My wife (and best friend) Kim and I were referred to a retinal specialist in Washington, D.C. You need to see a retinal specialist.” The feeling was dread, it was silence, it was fear, it was unfamiliar, it couldn’t be. It started fine, but routine quickly turned to horror when the doctor’s face went from relaxed to concerned. What was your first reaction to the diagnosis of Usher syndrome?Īt the age of 30 and on the heels of coming in second place in an international portrait competition, I went for my annual routine eye checkup. Although I began wearing glasses and contact lenses in middle school, it wasn’t until I was 30 years old before any doctor suggested that I had retinal issues. Mary Beard, who was amazing, as I have always been told that I speak much better than I hear. I then had speech therapy in first and second grade with Mrs. She brought this to my parents’ attention, and we visited an audiologist who confirmed that I had hearing loss, and fitted me with a set of hearing aids. However, when she turned away from me toward the chalkboard, I did not. In kindergarten, my teacher noticed that when she was facing me, I understood her. What is your earliest memory of hearing loss and vision loss? He is funny, a great storyteller, a gifted artist and amazingly optimistic. Tim has Usher syndrome, a condition characterized by hearing loss and progressive vision loss, but it certainly hasn’t stopped him from pursuing his passion for painting. It was a breezy Sunday in May when I drove out to bucolic Berryville, Virginia, to meet Timothy Chambers and watch him paint a plein aire landscape. Living a Creative Life with Usher Syndrome I interviewed and photographed Timothy for this feature. Artist Timothy Chambers is our cover feature for the July/August 2014 issue of Hearing Loss Magazine, which I design bimonthly for the Hearing Loss Association of America.
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